2012 Promises for Progress—Fun Anecdote

And finally, a fun anecdote that is mentioned on the NFCA website but was first brought to my attention by my sister, who shared the Gluten Free Optimist Blog entry .

If you have followed cooking competition shows, you might have heard about the “Cupcake Wars” on the Food Network.  Gluten-free cupcakes won the prize and the Gluten Free Optimist provides links for more information. 

Locally, I noticed that Gigi’s Cupcakes advertises that gluten free cupcakes can be ordered with advance notice.  However, cross-contamination appears likely, as relayed by a website notice: http://www.gigiscupcakesusa.com/allergeninformation

For those with an entrepreneurial spirit, I believe that a totally gluten free café would be successful here!

2012 Promises for Progress—Part B

Also from the NFCA  (12/29/2011):  FDA Issues Request for Information on Gluten in Drug Products

“The U.S. Food and Drug Administration's (FDA) Center for Drug Evaluation and Research (CDER) has issued a Request for Information and Comments in the Federal Register concerning the presence of gluten in prescription and nonprescription drug products intended for human use. The FDA is interested in hearing from stakeholders regarding the use of drug ingredients derived from wheat, barley, or rye that may contain gluten in drug manufacturing, and whether alternatives may be or may not be suitable or available.

The FDA would like to hear public input, including input from stakeholders in the scientific and research community, and excipient and pharmaceutical finished product manufacturers. Among other things, commenters are requested to identify reasons, if they exist, why certain drug ingredients must be derived from wheat, barley or rye, and why the flexibility to use these grains as ingredient sources may be important.

Responses will help inform the FDA's thinking about ways to help individuals with celiac disease avoid gluten in drug products.

To read the notice and submit a comment, visit www.regulations.gov and search for document ID FDA-2011-N-0842-0001.

The FDA also has awarded NFCA a grant to study the impact of gluten in medication. As part of our investigation, NFCA will launch a survey in the first week of January 2012. Be on the lookout!”

2012 Promises for Progress—Part A

Some good news relayed by the National Foundation for Celiac Awareness (12/12/2011): Report finds more restaurants appealing to celiac and gluten-free needs.

“More restaurants are recognizing the need for gluten-free options. According to a new report from Technomic, a foodservice consulting firm, the number of menu items labeled as "gluten-free" increased by 61% between 2010 and 2011. The boom comes as more individuals go gluten-free for celiac disease, gluten sensitivity or other health-related reasons. Despite this increase, 25% of individuals following a restrictive diet or living with someone who does believe that dining out is still a challenge compared to eating at home, the report noted. In addition, of all the consumers polled, 73% said they want restaurants to provide clear information about menu items, including potential food allergens. To read more about this report, see the article on MediaPost News.”

Golden Years

An article in the latest GIG newsletter is headlined “Gluten Free in your Golden Years” but the information seems applicable to anyone.  I would encourage all to review as a refresher about which foods contain essential nutrients and WHY they are essential.

http://library.constantcontact.com/download/get/file/1102560218550-165/Elderly+GF+11+28+11.pdf

Oven Calibration

This is a random post and may be information that is commonsensical for everyone but me.  While looking for a Carol Fenster recipe on her website I stumbled upon a post about how crucial it is for an oven to be calibrated correctly with gluten free baking.  Before I embark upon Christmas baking I will purchase an oven thermometer!

Wiley’s Smuteye Grill

As I think about gluten free options for large meals during the holidays, I am reminded of the amazing BBQ donated by Wiley’s Smuteye Grill for our meeting in October.  The meat was so tasty that no sauce was needed.  Even better, because it is so minimally processed, the group members with other allergies (such as to dairy or soy) could enjoy the BBQ as well.  The only problem about Wiley’s Smuteye Grill is that it is in Smuteye, AL and we cannot pick up a meal on the way home.  However, if you have time to drive or happen to be in the area, I think it will be worth your while.  The Grill has a Facebook page and the contact phone is 334-474-3623.

French Meadow Bakery

Since everyone loved the new gluten free buns at Red Robin so much, I asked the manager which brand they use.  My understanding is that French Meadow Bakery is highly regarded in the GF community for their commitment to standards.  You might want to check out their website to read about the company and download a coupon.  Not sure the buns are available in town yet but I have seen some of their other products at Health Wise Foods.

November Social

A big thank you to Red Robin for so graciously accommodating our group.  While they have probably had groups of 27 or more before, it was a first for them to host so many ordering gluten free.  They ran out of the color-coded baskets and the manager said she would order more.

One lesson learned is that no matter where we go and whether there is an official gluten free menu or not, we cannot assume anything.  If the gluten free menu states a salad should not have croutons, we must remind the server to make a note for the chef.

The gluten free buns (from French Meadow Bakery) were a big hit, although be prepared for the surcharge.  Most places offering gluten free bread do the same thing (like Jason’s Deli) because it costs the restaurant more to order the GF version.

The evening seemed to be a hit—we will have to plan more socials in 2012!

Jane Fry

We were saddened to hear that one of our members, Jane Fry, passed away November 21st.  A link to the obituary is provided below.  Jane was one of our founding members and looked for ways to further the cause of gluten intolerance awareness.

http://www.montgomeryadvertiser.com/apps/pbcs.dll/article?AID=2011111260301

More Research

Fascinating new research published in Gastroenterology & Endoscopy News:  NOVEMBER 2011 | VOLUME: 62:11

http://www.gastroendonews.com/ViewArticle.aspx?ses=ogst&d=In+the+News&d_id=187&i=ISSUE%3a+November+2011&i_id=789&a_id=19710

The strongest wording I have found advocating genetic testing, from Frits Koning, PhD:  “…I would advise HLA-typing of the child [when a first-degree relative of the child has celiac.]  If the child is not HLA-DQ2- or HLA-DQ8-positive, there is no risk.  If the child happens to be HLA-DQ2- and/or HLA-DQ8-positive, there’s a 70% to 80% chance he or she will have celiac disease and parents should watch out for symptoms after introducing gluten.”

Come Join Us!

If you are visiting this site because you saw mention of us in the Montgomery Advertiser, you may have the same question I received earlier today.  Yes, we were trying to get an approximate head count for tonight’s social at Red Robin, but you can absolutely join us.  We will have information and fliers and membership forms on hand.

Red Robin Social

I love to share progress in the gluten free community!  I called the manager of Red Robin yesterday to confirm our November social for Tuesday, Nov. 15^th at 6 p.m.  Our members will receive 10 percent off our orders that night.  Manager Sheila Moon shared that her restaurant just received a shipment of gluten free buns!  We can still order burgers and sandwiches in their lettuce wedges but now we have the option of traditional buns.

Her one request was a headcount so that she can ensure she has enough servers.  Please let me know by Thursday, November 10^th (email dr.hetrick@charter.net or call 334-328-5942) if you plan to attend and how many will be coming with you.   

Meanwhile, you can start perusing the Red Robin GF Menu.

Note that where the menu states order with “no bun” we will now be able to request a GF bun.

If you are interested in GIG-Montgomery but have not been able to attend a meeting yet, you are welcome to join us at Red Robin.  We will have membership information and forms with us.  Just let me know!

Allergen Free Candy

Fall festivals on Monday and trick-or-treating; no one wants to search for information on each piece of candy.  Thankfully, there are trusted sources in the GF community who come up with lists for us.  Of course, each person must give the warning to please always check with manufacturers, but Alison of Sure Foods Living has given us a great start: Quick List 2011

Thanks Alison!

International Celiac Disease Symposium

Here is an excellent, brief overview of the discussion and findings that emerged from the preeminent gathering of celiac experts across the globe.  The 14th Annual International Coeliac [Celiac] Disease Symposium in Oslo, Norway was held in June.  Particularly rewarding for me to read is the long-overdue emphasis on the gluten sensitivity side of the spectrum.  You can read the synopsis here; thanks to Mike Duffy for the alert.

Thanks to Mary & John Ficzere

Many thanks to the Ficzeres for giving such an informative presentation at Thursday night’s meeting.  Mary developed a comprehensive report but fell ill earlier in the week, so John stepped up to deliver the information.  There were several handouts as well; we will try to run off more copies for future meetings if you missed it.  We have such knowledge and talent within our group and I look forward to hearing from more of you!

F.I.T. Center - Speaker on Gluten Intolerance

I received notification from the F.I.T. Center of Montgomery (7047 Halcyon Park Dr.) that Certified Nutritionist Camille Gallinger will be speaking on the title “Living Well Despite Gluten Intolerance” on Saturday, Oct. 29^th from 9-11:30 a.m. and again from 1-3:30 p.m.  The class is free with encouragement to donate a non-perishable item to the Montgomery Area Food Bank.  For questions or to register, contact Valerie James, RN at 334-273-0904.

Column by Local Physician

Wonderful to see another locally-based physician with celiac fully on his radar screen.  Dr. Jefferson Underwood III submitted a column to the Montgomery Advertiser, which ran on Tuesday, October 18, 2011.  Especially encouraging is the fact that he addresses the entire gluten sensitivity spectrum and not just celiac disease.

http://www.montgomeryadvertiser.com/article/20111018/LIFESTYLE/110180318/-1/7daysarchives/Celiac-disease-more-common-than-you-d-imagine

Gluten Free Living Website

A tip from member Mike Duffy:

There is a great compilation of information about ingredients on the Gluten Free Living website: http://www.glutenfreeliving.com/ingredient.php

You can book mark that page for the next time you are wondering about whether something is safe to consume, like buckwheat.

Thanks Mike!

October Speaker Mary Ficzere, RN

We are excited to have one of our own members, registered nurse Mary Ficzere, as our speaker for the October meeting.  Mary has an extensive and varied background in the nursing profession, combined with the personal experience of living with celiac.  Mary has 37 years of nursing experience and is a licensed RN as well as Social Worker (LBSW) in the State of Alabama.  For the past 10 years she has worked in the Office of Home and Community Services of ADPH.

Mary plans to speak on several key areas, including vitamin supplementation needed for everyone and especially those with an immune response to gluten.  She will also cover essential lab tests that should be ordered post-diagnosis as well as the availability of at-home test kits.  Everyone will benefit from Mary’s experience and expertise; feel free to bring your questions!

At the Ballfield

Any members who would like to contact the Montgomery Biscuits?  A GF kiosk should not be difficult!

The next time you are in Seattle…see the post from "Gluten Free Mom."

Or in Colorado—the Rockies led the way: Link from MLB

According to Triumph Dining, Atlanta’s Turner Field also has GF options.

Another W-S Discount

Another bit of fun news about our meeting this Thursday at Williams-Sonoma.  A new sale on bakeware starts Thursday—15 percent off.  Our members will get an additional 10 percent off, so have fun perusing the options! 

Melissa Wallace will do the cooking demonstration.  Not only is she familiar with the care that must be taken while cooking GF but she will also be sharing insights from the “Food Wisdom” program.

Also, they do not usually have chairs during their cooking demonstrations but have agreed to have a few available.  See you there!

Williams-Sonoma Discount

I am so excited to have our monthly meeting at an alternate location for the first time.  Help me spread the word that it will not be at Taylor Road Baptist Church on 9/22 but at Williams-Sonoma in The Shoppes at Eastchase.  The managers at Williams-Sonoma are working on a cooking presentation for our group that will also highlight the many GF items the store sells.  An added bonus is that the night of our meeting, members will receive 10 percent off all purchases! 

In addition to the newer GF flour blend, cookie mix, brownie mix and pancake/waffle mix, the store will inform us of the many other mixes, oils, spices, etc. that are designated gluten free. 

Sami’s Bakery Warning

I am someone who has purchased Sami’s Bakery products.  I am passing along the latest warning about gluten content, courtesy of Tricia Thompson, RD.

Read her explanation of Gluten Free Watchdog testing on her website here:

National Celiac Awareness Day

Just read about this today—how encouraging!

From The National Foundation for Celiac Awareness:

The U.S. Senate has passed a resolution designating Sept. 13, 2011 to be "National Celiac Disease Awareness Day." This action, which honors those affected by celiac disease, also commemorates the birth of Dr. Samuel Gee, a pioneer in celiac disease research.

The resolution touched upon several issues that warrant greater awareness of celiac disease, including:

"As recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis"

"Half of all people with celiac disease do not show symptoms of the disease"

"Delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs"

"Celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome"

In passing the resolution, the Senate declared that "all people of the United States should become more informed and aware of celiac disease" and called for ceremonies and activities to recognize the day.

September Meeting

We are two weeks away from our next meeting and we have exciting news—note the change in location for September!  Many thanks to member Elaine Manikas, who made me aware that Williams-Sonoma now carries some gluten-free products and even did a cooking demonstration about a week ago.  Elaine also talked to the management about our group.  When I later spoke to the general manager, Jen was gracious and inquisitive and offered to host our September meeting.  More details to come, but make note of the change in location.  If you have never been to the store, it is in The Shoppes at East Chase near Taylor Road Baptist Church, where we have been meeting.  Williams-Sonoma is located between Dillard’s and the central fountain within the shopping center.

August Surprise

While our guest speaker had to cancel at the last minute, members had a nice surprise at our August meeting, courtesy of Earth Fare.  As you can see from the pictures below, a wide assortment of gluten-free cookies, pasta and other shelf-stable products were provided for our members to try.  Instead of one large gift basket like we did in February, we numbered each product to match numbers on name tags.  Attendees then found the product number that matched their name tag to take it home.  Everyone went home with a different product (along with an Earth Fare bag) so we should have lots of product reviews at the next meeting!

Additional Benefit for GIG-Montgomery Members

Many thanks to Jason’s Deli for its continued support of GIG-Montgomery.  A couple of months ago our group was treated to a spread from the Jason’s Deli GF menu.  The sandwiches included in that spread were made on the larger Udi’s GF bread.  Those loaves of bread can be purchased separately for $12.  However, if GIG-Montgomery members show the teller our membership card, we can purchase those loaves for $10 (at Montgomery location only).  Be sure to thank the management when you are there!

Interested in Helping with Celiac Research?

I am reposting from the National Foundation for Celiac Awareness website because I know that some of our GIG-Montgomery members have family members who can participate.

----------------------- 

The Celiac Center at Beth Israel Deaconess Medical Center (BIDMC) is looking for adults who have relatives with celiac disease but have not been diagnosed with celiac disease and are not on a gluten-free diet. Researchers are interested in testing the usefulness of a new investigational self-administered fingerstick blood test for celiac disease. 

People who participate will be sent a packet with a fingerstick celiac test and a short survey.  The survey and the test will be sent back to the Celiac Center at BIDMC in the provided envelope. Participation is expected to take less than 20 minutes. Please note that the fingerstick test is investigational (not FDA approved) and should not be used for celiac disease diagnosis. 

BIDMC has a limited number of test kits available. They will be given out on a first-come, first-served basis with a limit of 2 kits per person.

This study is completely anonymous and BIDMC will not have any way to tell who was tested with these kits. The study is being conducted by Dr. Leffler at BIDMC and is being sponsored by 2G Pharma.

Participants  must meet all of the following criteria:

·         Over the age of 18

·         A first or second degree relative with celiac disease

·         Not previously diagnosed with celiac disease

·         Not on a gluten-free diet or low-gluten diet within the past 3 months

·         Able and willing to self administer the test, complete a short survey form and return both in the provided envelope

·         Willingness to have follow up medical evaluation in the event of a positive test

For more information, please contact:

Dr. Daniel Leffler
The Celiac Center
Beth Israel Deaconess Medical Center
Phone: 617.667.8397
celiac@bidmc.harvard.edu

Enjoy Life Allergy Free Cookies Courtesy of Earth Fare

Many thanks to our local Earth Fare for donating boxes of cookies from the Enjoy Life Company for our meeting Thursday night.

Some of our members and guests must avoid more than just gluten.  Here is a link from Enjoy Life’s website that explains their “allergy-friendly” policy: http://www.enjoylifefoods.com/our_lifestyle/allergy_friendly.php

There is new leadership at the local Earth Fare store.  Store Manager Tim encouraged me to spread the word that if we are looking for a particular GF product to let him know!

Gluten Intolerance Group Announcement

Has Consumer Perception of GF Food Safety Changed Over Time?

The Gluten Intolerance Group &

The University of Chicago Celiac Disease Center

August, 2011

The University of Chicago Celiac Disease Center has partnered with the Gluten Intolerance Group on an exciting initiative to further our understanding of consumer perception of gluten free food safety. If you have 20 minutes to participate and have been diagnosed with celiac disease or gluten intolerance/gluten sensitivity, please complete this food safety survey. We hope to gain valuable information from this study that will identify education and purchasing behaviors within the gluten-free community that would be useful in advancing gluten-free products and dining; and identify education, training, and communication needs between and within the consumers and food manufacturing and food service industries.

To complete the survey, please visit this link and click to accept participation on the first page:

http://survey.constantcontact.com/survey/a07e4m0yyolgrdqh65j/a012igrjyzg77/greeting

Please share this with others in the GF community. Next week a food industry survey will launched that compliments this survey.

 Take Survey Now

Guest Speaker--Dr. Robert Brinson

As we announced at last month’s meeting, our guest speaker in August will be Dr. Robert Brinson, MD of Digestive Disease Associates.  Dr. Brinson is a Diplomate of the American Board of Internal Medicine as well as the Subspecialty Board of Gastroenterology, and is also a Fellow of the American College of Nutrition.  Dr. Brinson received his M.D. in 1981 from the Medical College of Georgia and has a private practice of gastroenterology in Montgomery.  The meeting is next Thursday, August 25^th from 6-7 p.m. in the Fellowship Suite of Taylor Road Baptist Church (see sidebar).  Bring your questions for Dr. Brinson!

GF Care Packages

Facebook notice from the Celiac Disease Center of the University of Chicago:

“If you or your child has been biopsy-diagnosed with celiac disease in the past 12 months, we may be able to help with our Gluten-Free Care Package. Please contact our office at (773) 702-7593.”

Dr. Kenneth Fine presents “The Gluten Truth”

Below I have partially copied an announcement from the Intestinal Health Institute about an upcoming conference hosted by Dr. Kenneth Fine, Founder and Director of the Institute and EnteroLab. 

---------------------
Dr. Kenneth Fine and the Intestinal Health Institute are celebrating their 11th Anniversary with a very Special Conference Event:
THE GLUTEN TRUTH MEETS THE CIRCLE OF LIFE: A TALE OF TWO HEMISPHERES
November 3-6, 2011 The Westin Galleria in Dallas, Texas

Dr. Fine has gathered a stellar international scientific panel to recount exactly how the discovery was made that most people affected by gluten sensitivity today do not have celiac disease. This panel includes Dr. John Fordtran, discoverer of microscopic colitis, Dr. Willem Dicke II, whose father discovered in Holland that gluten was the cause of celiac disease, and Dr. Chris Mulder, a current world-renown celiac and microscopic colitis researcher from The Netherlands, among others.

For information on the conference and to register online, please go to:
http://intestinalhealth.org/2011dallasevent
or call 804-247-1655 for more information.

* Full Conference Program, 5 Meals, Concert & Welcome Reception: $245 when registering before Labor Day.  Single day low prices are also available. And all meals will be gluten-free!

Make Your Voice Heard at the FDA

In case no one has seen this elsewhere, the FDA has (re)-opened the comments period for its 2007 proposal on gluten free labeling.  (Yes, from 4 years ago!)

The FDA seeks comments from consumers, manufacturers, organizations, etc., and it is always best to provide what you deem as proof/evidence to support your contentions.  The comment period ends November 2^nd and the FDA aims to publish a final rule by the 3^rd quarter of 2012.  Click here for the FDA’s proposal. 

[To read the NFCA’s thoughts, click here.]

Getting CME Cards to Doctors

I did receive the packet of additional cards about the CME (Continuing Medical Education) from the NFCA after returning from last night’s meeting.  Whether you were able to attend or not, please let me know if you have a doctor’s appointment before we next meet August 25^th and you are willing to share a card with that doctor.  I will mail it to you if time is of the essence; otherwise, I will have the additional cards at the 8/25 meeting.

As we reviewed last night, the latest medical research (much of which contradicts what was taught in med school in prior years) is not reaching doctors in the field.  This is true of not only primary care providers but also specialists.  There are many medical issues competing for doctors’ attention, there is no pharmaceutical remedy being touted by the thousands of reps who visit doctors every day, and there are not very many CMEs available.

The NFCA recognizes that “the biggest impact is gained when a patient speaks directly to his or her provider about the need for increased knowledge about celiac disease among the medical community.”  Things I love about this CME:  the course is compiled by highly respected physicians in the field, it is free of charge, and there is a postcard describing its content, making it easy for you to hand to your doctor.  Your doctor should receive this much more readily than something you printed off the internet, regardless of the legitimacy of the printout.

July Meeting of GIG-Montgomery

Next Thursday evening (6-7pm—see sidebar) is our next meeting of GIG-Montgomery.  The National Foundation for Celiac Awareness is sending materials for me to pass out at the meeting.  Part of our mission is to assist those who have already been diagnosed with a form of gluten intolerance as well as those who are suffering without a diagnosis.  The reality is that by helping those in the latter category, everyone benefits.  With increased awareness of the latest research among medical providers will come a corresponding increase in the number of diagnoses.  When the number of confirmed diagnoses increases, demand for gluten free food, crafts, restaurant menus, etc. will increase and quality of life will improve.  I want to share a direct way to facilitate this progress!

National Foundation for Celiac Awareness—Sarah’s Story

This is a stunning personal story, printed on the website for the National Foundation for Celiac Awareness:  “Sarah’s Story”

Go Picnic Discount

GIG-Montgomery has not received any Go Picnic products to try nor can I personally attest for the taste of their gluten free options.  However, it seems like a great idea and I wanted to share a current discount.  Go Picnic is advertising that everything site-wide is 20% off when you use the coupon code “SANTA20” at checkout, which expires July 18^th.  Click here to go directly to Go Picnic’s GF options.

PSA from Celiac Disease Foundation

The Celiac Disease Foundation has released a public service announcement (PSA) about celiac disease awareness.  The 60-second spot can be viewed on YouTube.  The CDF intends for the PSA to be an easy way to share an overview with “family, friends, neighbors, church groups, co-workers, classmates and your social network buddies.”  You can get a copy on DVD by calling the CDF at 818-990-2354.

Who Certifies Gluten Free?

GIG wants all branches to help clarify messages about how products are certified gluten free and the GFCO’s lead role in that effort.  The GIG message:

Scientific Gluten-Free certification is not new.

In 2005, the Gluten Intolerance Group (GIG) launched the first comprehensive gluten-free certification program using a scientific-based standard of 10-ppm gluten, third party auditing using highly qualified auditors in the manufacturing industry, and a robust testing process including random point-of-sale testing by independent labs and regular in-plant testing of finished products, equipment and raw materials.

NFCA and CCA programs, launched similar certification programs in the last few weeks, each claiming they "are the only scientifically-based gluten-free certification program..." Like the claims of these programs, GFCO did extensive research before setting its standards.  GFCO has set the industry standard and is the program that organizations like NFCA and CCA are modeling their recently launched programs after.

The Gluten-Free Certification Organization (GFCO) is currently performing audits in 12 countries with certified products sold in four countries.

GIG's GFCO program was the ONLY certifying organization represented as an ADVOCATE at the 1-in-133 labeling event in May, with the opportunity to speak as one of the top leaders with FDA representatives in a private meeting about the issues industry and consumers face. GIG also had representatives on the Hill encouraging Congress to push the FDA to finalize its ruling on gluten-free labeling. GIG has been attending regulatory meetings for years, representing consumers and industry.

GIG is a 37-year old organization with a reputation for being a proactive industry leader with progressive programs. To learn more about the Gluten-Free Certification Organization visit http://r20.rs6.net/tn.jsp?llr=wntl89cab&t=rr4otfgab.0.emd9m8cab.wntl89cab.16572&ts=S0634&p=http%3A%2F%2Fwww.gfco.org%2F.

Tips on Area Eateries

Kudos to the Amsterdam Café (in Auburn) and specifically Christy, who worked with me and communicated with the chef to ensure that we had a great gluten free meal.

Locally, I recently tried the Applebee’s on Taylor Road since the corporate website has a gluten-free menu.  The host did not know what gluten is and said that there was no separate gluten-free menu, but I had a copy with me.  I thought that we might have to leave but the waitress knew all about gluten and cross-contamination.  If you want to eat at that Applebee’s, I highly suggest that you call ahead and make sure that Augenee is working!

Simply Shari’s

Almost forgotten in the excitement over our guest speaker at the May meeting were the samples provided by Simply Shari’s.  That company provided several varieties of their packaged cookies for our members to try.  Samples included shortbread cookies, lemon shortbread, almond shortbread, fudge brownies, and chocolate chip cookies.  All of them were very tasty and it seemed that several different “favorites” emerged.  The bottom line is that you would never know they are gluten free and they have a long shelf life.

I have not seen these cookies at Health Wise Foods or Earth Fare.  If you will go to the Simply Shari’s website, look under “Where to Buy” and you will find a Store Request Letter that you can print and take to the store of your choice.  When I have made requests at Health Wise in the past, all Steve or Willard needs is the UPC number from the package.  You can look at the bottom of the Store Request Letter and find the UPC for your favorite cookie. 

I noticed on the Simply Shari’s website that the company offers pizza and pasta as well.  If they are just as tasty, I cannot wait to try them!

GIG National Conference

Leaders of GIG-Montgomery are not able to attend this conference but I do hope that one of our members is able to go.  Please read the message below that I received today from the national executive director, Cynthia Kupper.

-----------

Greetings!

Times are tough and the south has suffered enough.

GIG is offering a "No Frills Conference Rate" for our special friends in the Southern States. Come take advantage of all the live sessions, panels and fun at the conference AND Food & Tasting Expo for a very low rate - just for you.

"No Frills" Conference Rate: $40/day or $80/weekend: includes all conference panels and sessions, and access to the Food & Tasting Expo only. Children attend free with an adult and may participate in youth activities if space is available.  No child care is available.

Usual Conference Rate: $158/per day or $295/weekend: includes live sessions, meals, copies of all presentations, and access to the Food & Tasting Expo.

Bring this notice and register at the door or reserve your place now by calling 253-833-6655 (Mon - Fri 8-4)

Our 37^th Annual Conference is at the Gaylord Palms Hotel in Orlando, FL July 1-2.

GIG is offering this special rate to our friends in the Southern States who have been through so much in the last several weeks. In recognition of the pain, suffering and losses you have been through, we make this special offer to you. Through the economic hard times and the nastiest of weather, you still need to be gluten-free. Come take a break and enjoy a weekend with us. We're here to help.

We look forward to seeing you there.

www.gluten.net/conference

Cynthia Kupper, RD | Executive Director

Lulu’s of Gulf Shores

Thanks to a tip from Ruth Givens, we knew to try Lulu’s of Gulf Shores when taking our beach vacation.  We were so thankful for the tip!  I could not find another non-chain restaurant to accommodate us.  Given the sheer number of visitors, I was quite surprised at the utter lack of awareness about gluten intolerance.  Thinking that the more upscale restaurants would be more likely to know about gluten, I called a few, including Wintzell’s.  Apparently the Montgomery restaurant is more progressive, as the manager at the Orange Beach Wintzell’s was not interested in accommodating us.  After speaking with another manager, she seemed flustered and asked, “You do know that we are a seafood restaurant?” 

So enough of the discouraging news and let me give a big plug for Lulu’s.  I do not know why, but Lulu’s is all over multiple allergens.  A manager personally takes your order and retrieves your order from the kitchen.  We ate there twice and the whole family was happy!

From GIG National

Dear GIG of Montgomery,

GIG URGENTLY requests your HELP! 

There are only 18 days left until the Annual Education Conference in Orlando!

We are establishing volunteers to fulfill volunteer duties while at conference.  GIG National is requesting YOUR HELP recruiting local GIG members or non-GIG members, friends and/or families!  Having celiac disease or gluten intolerance is not a requirement to be a volunteer....though knowledge of it is helpful (in case you are approached by the general public)!

There are several volunteer positions available to fill, including:

Wednesday, June 29 - Meal Food Organizer (morning) - 4+ volunteers

The purpose of a meal food organizer is to assist the primary food organizer determine which donated product is intended for which conference day and meal period (i.e. breakfast, lunch, dinner).  This task can be challenging, yet, in the end allows for a smooth production within the kitchen at the hotel.

Wednesday, June 29 - General Runner & Packet Assemblers (afternoon) - 8+ volunteers

These volunteers will fill "goodie bags" with conference/speaker notes, vendor sales sheets, and/or samples. These goodie bags are for conference registrants only (not general public) - an estimate of 300 registrants? (Final numbers to be determined later this month.)

Wednesday, June 29 - Registration Table set up (late afternoon) - about 1-2 volunteers, at least 1 GIG staff

Gathering/organizing/setting up materials/displays needed for GIG National. This includes any prep work of organizing name tags (to be alphabetized) if they require additional work.

Thursday, June 30 - Saturday, July 2 - Registration Table  (Opens at 7am Thursday, 6:30am on Friday & Saturday) - up to 3-4 volunteers during the day (plus 1-2 GIG Staff), more schedule details to follow.  Please indicate your interest at this time.

Duties to include registering conference attendees, helping general public with purchase of entrance to exhibitor fair (only), answering general questions about GIG or hotel facilities (i.e. closest restroom), helping registrants and general public sign up for general raffle items. Miscellaneous duties as they arise at the registration desk.

Thursday, June 30 - General Raffle Set Up (set up next to Registration Table - Registration Staff will monitor) - Open to anybody (conference registrants and general public).  Raffle winner must be present to win.

Friday, July 1 - Saturday, July 2 - Exhibit Hall Greeters/Attendance Verification - This will depend on how many sets of doors there are to monitor - 4 volunteers for now (for 2 sets of doors)  Please indicate your interest at this time.

The purpose of the Exhibit Door Greeter is to verify those persons going into the exhibit hall.  Each attendee will have a name badge, identifying their paid attendance at the conference.  The exhibit hall will be open to the public from 9am to 4pm as well, and they will need to verify their paid entry into the hall with a green wristband on Friday and a purple wristband on Saturday.  Please note: The public may not use their Friday green wristbands to return on Saturday, as they must pay for re-entry.

Friday, July 1 - Saturday, July 2 - Lecture room monitors/Attendance Verification - This will depend on how many sets of doors there are to monitor - up to 2 volunteers at a single time (for concurrent lectures).  Otherwise a single volunteer would be needed to verify for keynote speaker presentations each day, etc.  Please indicate your interest at this time.

The purpose of the Lecture room monitor is to verify those persons going into the lecture.  Each attendee will have a name badge, identifying their paid attendance at the conference. The general public is NOT allowed into these sessions and must be directed back to the exhibit area only.  Go to http://r20.rs6.net/tn.jsp?llr=wntl89cab&et=1105909356369&s=16572&e=001u0VVqTFnY58KCsuJvguIAzMHFnSlvzI9YGlZ2z6owjJaz112poMLRP3J8od9n9RN0z_GVb0muM1Bf0FNdfFmGu6Dcg7pQy1bZFmLvZeSh-DEfCSB3QkEgT-5tCHK5PzFgCT9zHAvgj4= for conference program details/times and indicate your volunteer availability.

Friday, July 1 - Saturday, July 2 - Treasure Hunt raffle entry verifier - These volunteers verify each entry placed into the Treasure Hunt raffle to make sure the booklet has been fully stamped by vendors within the exhibit hall.  Raffle is open to conference registrants only - no general public.  Volunteers will work this position during the exhibit hall hours.  Split shift with 2 volunteers each day, (9am-12pm & 12pm - 3:30pm)  Each day will result in a winner - drawing occurs at 3:30pm.  Hall closes at 4pm each day.

Friday, July 1 - Saturday, July 2 - Meal Ticket Takers (Breakfast & Lunch only) - This will depend on how many sets of doors there are to monitor - possibly 2 - 4 volunteers.  More details to follow. Please indicate your interest at this time.

The purpose of Meal Ticket Takers is to take attendees' tickets for their breakfast and lunch meals, verifying they have paid for their meals.  It is VERY important to keep an eye on this process, as a certain number of 'plates' have been purchased from the hotel for those who've paid.

Saturday, July 2 - Teen Challenge Runner/Helper - possibly 1-2 volunteers Please indicate your interest at this time.

The purpose of a runner/helper is to assist Chef Aaron Flores with obtaining any last minute or 'on the spot' necessity for the Teen Cooking Challenge.  May involve running to the hotel kitchen(?)  Preparation/set up begins at 8am for the TAGS Teens to begin promptly at 9am.  A clean-up crew will be necessary to help clean up the room used for the challenge so that Chef Aaron can move on to his next obligation during the conference.

Friday, July 1 - Saturday, July 2 - Demo Volunteer - 1 volunteer present for each demo.  Friday 9-10am, 10:30-11:30am, 1-2pm, 2:30-3:30pm; Saturday 9-10am, 10:15-11:15am, 11:30-12:30pm, 12:45-1:45pm, 2-3:30pm.

Assist in set up and clean up of the demonstrating company, as there is only a brief period of time before the next demo is to begin.

More volunteer opportunities may come available very soon, but these are what I know we need at this time.  I hope I have given enough detail at this time so volunteers have a good idea of what they would be signing up to do.  If more detail is requested, please let me know...  We will have a better idea of shift times once we have an idea of how many volunteers are interested in a certain volunteer position.

Please have all interested volunteers indicate whether they are restricted on their volunteer hour times, otherwise we will fill volunteer positions based on priority.  Volunteers are intended to be easily spotted, therefore will be receiving a t-shirt from GIG to wear when on duty.  GIG staff will also be wearing attire that makes them easily recognizable, should volunteers need to direct persons to them.

Contact me right away with volunteer names and contact information - emails and telephone numbers.

Thank you!

Mandy Lyons

Office Manager

mandy.lyons@gluten.net

P: 253-833-6655 ext 110

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GIG conference - Registration Special -20% off the current registration rate.

Register by Friday, June 10^th and take 20% off the current registration fee. This special offer is open to non-GIG members too.

To take advantage of this special offer register online. Any registration received before midnight June 10^th will receive a 20% discount.

You can also register by calling GIG at 253-833-6655 (M-F 8 to 4 PDT)